Every year, on 21 March, World Down Syndrome Day is observed, serving as a global reminder to raise awareness for the rights and inclusion of individuals with Down syndrome. This year’s theme is calling for all governments to improve the support system. To emphasise the necessary support that will enable the people with Down syndrome to lead a fulfilling life filled with dignity and autonomy.
- Understand Down syndrome – Downs yndrome is a genetic condition that is caused by the presence of an extra chromosome. This causes developmental and intellectual delays. Globally, it occurs in approximately one in every 800 people. In Bangladesh, the number of children born with Down syndrome is more than 5000 each year, with the number increasing every year. Nowadays early detection is possible due to advanced medical technology.
- Support in Bangladesh – Despite the early detection, the support for this condition is yet to be improved. Among the people of this country, awareness of this condition is very low. Due to the lack of understanding and awareness, people with the syndrome suffer from social stigma, exclusion from education, and health care services. However, there are people working and fighting for the cause of their well-being. Several organisations in Bangladesh are dedicated to supporting individuals with Down syndrome.
Initiatives taken by the Down Syndrome Society of Bangladesh focus on advocacy, education, employment and social inclusion. Their aim is to empower these children to their full potential. Another organisation Therapies Hub, provides speech therapy and other essential services to children with Down syndrome to assist their communication. While these organisations make significant contributions, the support available is still insufficient to meet the needs of all children and adults with Down syndrome.
- A call to action: University initiatives – Educational institutions have a crucial role in raising awareness and gathering support, both in terms of manpower and activities. Notably, some universities in Bangladesh have taken commendable steps. American International University-Bangladesh (AIUB) observed Down Syndrome Awareness Month in 2022 by organising rallies, cultural programmes and interactive sessions in collaboration with the Down Syndrome Society of Bangladesh (DSS-BD).
On the other hand, the University of Dhaka (DU) marked World Down Syndrome Day in 2018 with awareness activities aimed at educating students and the public about the condition. Just like AIUB and DU took steps to raise awareness, if all universities and students started supporting individuals with Down syndrome, not just on this day but throughout the year, the impact would be huge.
Universities could arrange awareness programmes, volunteer activities and inclusive policies to create a more accepting society. There are numerous universities in Bangladesh and thousands of university students to provide the support they need to grow. Regular efforts in education and advocacy would reduce stigma and improve access to resources, opportunities and inclusion in academic and social spaces.
Everyone deserves to be seen, heard and given a chance to shine. If we stand together, we can build a world where no individual with Down syndrome feels forgotten or left behind. Wouldn’t that be the type of world we all would want to live in?